Your feedback is highly appreciated and will help us to improve our ability to serve you and other users of our web sites. For your convenience, we provide you the following two options:

  • A questionnaire which will provide us with specific information needed to maintain the educational services and products we offer. The average time for the completion of this survey is 2 min.

  • A comment form if you would prefer to send us a brief comment only.

    Common Questions/Comments and Responses:

    "Please add _____________ disorder to this site"

    YGYH focuses on 15 disorders, which were chosen using three criteria: high incidence rate, severity of the phenotype (symptoms), and whether there is a known genetic cause. Although we would like to help anyone looking for more information on other disorders, limits on funding and staff time shaped the site to the 15 disorders presented.

    Can I download YGYH or is there a CD version of the site?

    YGYH is not available to download, nor is there a CD version. We encourage you to link to the site for inclusion in classroom presentations.

    Can I include a link to YGYH on my web page?

    We encourage links to YGYH that will bring information to people who want to learn more
    about genetic disorders.